I met my sister when I was forty-eight years old. Originally, I thought I would go to Probate court, become her medical guardian, and my obligation to her would be finished.

I had no idea at the time, I would make a significant impact on her emotional and physical well-being. But, I had no clue that she would have the same impact on my life. I didn’t dream of progressing from not knowing her to developing an unconditional love for her. How did this happen?

I am writing a book about my sister. I would welcome your questions. Please feel free to contact me at wyseworks365@gmail.com. I will answer your questions in future columns and possible add them to my book.

Back to the original question: how to be a special needs advocate? Initially, the most important action you can take is visit. Visit often. Visit unannounced. Visit at different times Visit. Get a feeling for the environment. Get to know the staff. Be friendly. Learn the routine of the group home. You might even take notes. Keep a journal. I did not. I wish I did. Like the time I arrived at 10:30 am and the lunch dishes were being washed. When did they eat breakfast? When would they eat dinner? I asked the staff on duty why so early, and his reply was something like, just getting it done. Yes, getting it done, but was this good policy? Was this good for the residents? That day, I was supposed to be taking my sister out for a little shopping and then lunch. I wasn’t go to feed her again. We just got coffee. What else was happening at the group home that I did not know about

I have a Keynote Presentation, “Lost and Found: How I Met My Sister.” will help you discover the triumphs and pitfalls of the Department of Developmental Services in CT and group homes. If you are interested in bringing me to your organization for a Keynote Presentation, please contact me at 203-314-3095.

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